Monday, January 28, 2008

Things are slowing down

Friends and family of BH are putting together a memory book. We are writing bits about his life, our times together. His lovely wife is reading it to him as he is awake or sleeps. It will go to his children, when they are a bit older, enough to understand a bit more. It is called "A Celebration of B's Life." My plan is to print, somehow, the entries on Brainhell.blogspot.com to include, so his family sees the outpouring from folks who didn't know each other in person, but who BH touched through his writings, shared with us all.

Friday, January 25, 2008

Only because it feels right

BH is a friend. We have all been part of his life with ALS. Even as anonymous viewers and posters, we have been touched by BH's writings, his opinions, his love for his wife and children and the challenges of caregivers, breathing, emergencies and the loss of a body containing a vibrant mind.

I visited BH last weekend and things looked pretty bad. He is worn out. Worn down. Nothing works. And he is exhausted. We had a tearful good bye. He struggled to type "ron bye bye." I wiped the tears from his eyes. I don't know, but I doubt I'll see my friend again alive.

We've been friends for 25 years. I was his best man. But all of you have brought BH, his lovely wife and his dear children into your lives. So I hoped that in case BH's life comes to an end, that when he can finally rest, that this blog can be a place to celebrate his life, your life, our lives. We live on through the memories of others. You are a wonderful community of love, worldwide. Amazing.